There are parts of Angelman syndrome that are hard… and then there are the seizures
1:06
YouTubeIt's Our Wonderful Life
There are parts of Angelman syndrome that are hard… and then there are the seizures
We’re in the middle of a medication change, and right now it’s been one of the hardest seasons we’ve faced. Griffin has been having 10+ seizures a day, lasting anywhere from 45 seconds to over a minute. We’ve had to use rescue medication, and every seizure leaves us holding our breath. People often ask what’s the hardest part of ...
23K views1 month ago
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A lot of people ask me, “What’s gonna happen to Brett one day? Do you have a contingency plan? Will he go into a home?” The answer is yes, I do have a plan… and no, Brett will never be put away and forgotten about. ❤️ This property, these houses, this land, and everything we’ve built has been designed around Brett and his needs. It’s Brett-proof. Angel-proof. Whoever steps up and takes care of Brett one day will get the property, the houses, the land… everything. Family takes care of family arou
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web21104
The reality of taking my son with Angelman syndrome swimming. 💙
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The reality of taking my son with Angelman syndrome swimming. 💙
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Yukon family advocates for daughter with Angelman syndrome to raise awareness and support
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