Part 3 and final part of our our GI doctors helps get C-Money diagnosed with Sanfilippo syndrome. unfortunately Sanfilippo syndrome is a rare, genetic disease. Both parents have to be carriers in order for a child to get it. Both my husband and I had no idea that we were carriers until Carter was diagnosed and we had never even heard of this disease. The best way to describe it is as a childhood version of Alzheimer’s. It takes literally everything from these children. They will develop typicall

Part 2 of how we came across C-Money’s fist genetic diagnosis #storytime #carterschallenge #medicallycomplex #parenting #momlife #caveman #cavebaby #ditl #chronicpancreatitis | Carter's Challenge